Just Diagnosed with ALS? This Is the Checklist I Wish I Had

If you’ve just been diagnosed with ALS, I want to start by saying two things: I’m so sorry, and I’m so grateful you found your way here.

I know firsthand how overwhelming those first days, weeks, and months can feel. The questions, the fear, the urgency. I remember Googling everything, trying to make sense of this diagnosis, and wishing someone would just hand me a real list—a practical, honest, no-fluff guide to what comes next.

So I made one.

This free resource isn’t like the others you’ll find. It’s not written by a doctor or a medical institution—it’s written by me, someone living with ALS. It’s a checklist of the things I wish someone had told me in the beginning: how to plan ahead, what really matters, how to protect your peace, and how to start navigating a life that now looks very different.

Whether you’re here for yourself or someone you love, I hope this guide brings you a little bit of clarity, courage, and community.

It’s completely free—just my way of saying: you’re not alone in this.

With all my heart,

Darin